Sunday, August 5, 2012

Bookshelf

I want to throw out there some resources for anyone who might be interested in learning more about chronic fatigue syndrome/myalgic encephalomyelitis.

First, a book I've actually read. If you are a believer struggling with CFS/ME, you need to read this book. Juli Andrews' story is remarkable. She almost died in a horse riding accident, but God spared her life. She came down with my DLF EBV while she was in college, and the multiple chemical sensitivities and other infections and diseases that have run their course in her body are heart-breaking. Her father records his daughter's story in close detail, interweaving spiritual lessons he and his family learned through her suffering. Buy Polishing God's Monuments here from the author's website.

Second, a book that is more fascinating and informative than anything, Osler's Web. I read parts of this book in the Spring of 2011 and would love to finish it eventually. It tells many stories about various outbreaks of CFS in the 1980s. This book features original research reported in a journalistic style by Hillary Johnson. You can find it at Amazon. The Master's College Powell Library has this book, for any Master's friends who are interested in checking this out.

Third, The Perrin Technique, by Raymond Perrin, an osteopathic doctor from Great Britain. Dr. Perrin believes that CFS/ME begins due to some kind of trauma creating a structural disorder which prevents fluids from draining properly through the lymphatic system. He has successfully treated many patients through osteopathic manipulation and a set of massages. You can check out his website, The Perrin Clinic and buy the book either there (if you happen to live in the UK) or from Amazon, if you are from the US. On the website there is also an informative video about his practice, including patient testimonials. I have not yet had time to  read Dr. Perrin's book, but my mom has, and I have been doing the self-massages on and off since May. I do notice improvement when I am consistent in doing them as frequently as I should.

Fourth, America Exhausted, by Dr. Edward Conley, another osteopathic doctor. Dr. Conley runs the Fatigue, FMS, and Autoimmune Clinic in Flint, Michigan. You can order his book very inexpensively (it is advertised on his website as being free, but you have to pay around four dollars for shipping and handling). I am looking forward to reading this book because Dr. Conley is the specialist I am making an appointment to see in the near future.

Fifth and finally, a book that I have not purchased, read, nor do I have plans to, but have heard it highly recommended: From Fatigued to Fantastic, by Jacob Teitelbaum. Although, I must say, that if I wanted to, I'm pretty sure I would pay for and read Teitelbaum's book over paying the $5,800 to have a consult with him....! He really must be an expert in the field if people pay that much to see him! You can find it available on his website here.

A rather old photo, judging by the glasses. This was at least three pairs ago. :)

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Disclaimer: If you have a health resource you can't resist sharing, I would love to hear about it if you feel it will be truly helpful. I am already doing my best to fight this illness from a nutritional, structural, as well as medical stand-point. Please avoid comments with "miracle cure" stories about your Aunt Milly's granddaughter who drank coltsfoot tea for a week and has been fine ever since. I'm very thankful it worked for her in her case, but there are so many environmental, emotional, and other factors that make CFS/ME complicated and different from just an average illness. That being said, please leave thoughtful and uplifting comments below.